Allison Muedder

About Allison.

Allison Muedder lives in Charlotte, NC with her husband Jon and their three beautiful children. Her son Finn was diagnosed with Hunter Syndrome in 2016, and she now serves on the board of Project Alive, a non profit focused on funding the cure for Hunter Syndrome. She strives to live authentically and love others well with intentionality, grace and hope.

All in Rare Disease

Surviving the New Normal

Apr 12

Apr 12 Surviving the New Normal

Allison Muedder

Family, Faith, Rare Disease

Holy Week Reflections

Mar 28

Mar 28 Holy Week Reflections

Allison Muedder

Finn, Rare Disease, Faith, Family

Our Diagnosis Journey

Mar 3

Mar 3 Our Diagnosis Journey

Allison Muedder

Family, Faith, Rare Disease, Finn

How Much Longer Do We Have? Living by Faith While Our Son Is Dying

Nov 15

Nov 15 How Much Longer Do We Have? Living by Faith While Our Son Is Dying

Allison Muedder

Faith, Family, Rare Disease, Finn

Photo by Allison Fowler

Looking at Life Through the Lens of Eternity

Nov 1

Nov 1 Looking at Life Through the Lens of Eternity

Allison Muedder

Faith, Family, Finn, Rare Disease